On Your Side | Real Life Story: Often times, we hear stories of people with health-related problem and their successful journey of healing. This time, Parents Avenue brings you the life-changing story of Charlie from Kota Marudu, Sabah.
Written by Sylviannie Jreneus
Parents Avenue Magazine Issue No.11 April to June 2018
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| Charlie with his parents in the ward on the day of discharge. |
Charlie bin Magawa is a 9-year-old boy from Kampung Mantus, Kota Marudu. He is the fifth and the youngest child of Magawa bin Malugot, 55 and Roining binti Kulamau, 49. Charlie has two older brothers and two older sisters. The first two siblings, aged 28 and 25, are currently working with a private agricultural company in Australia. The third sibling, aged 21, is currently unemployed, whilst the fourth sibling is studying in Form One in SMK Tandek, Kota Marudu. As for Charlie, he goes to SK Tanjung Batu, Kota Marudu as a Year 3 student. With a big passion for badminton and art, Charlie leads a normal life just like every other boy at his age. But, little do we know, that Charlie was previously diagnosed with a serious health condition that, had he been left untreated, could have cost him his life.
It all started when Charlie, who was then only 5 years old, was down with fever and later begun to experience breathing difficulties. As every concerned parent would do, his parents brought him to a Kota Marudu Hospital to seek for further help. The doctor on duty did an X-ray on the little boy, which led to the first diagnosis – Charlie had heart issues. The same day that he was diagnosed, Charlie was sent into emergency and was straightaway transferred to Sabah Women and Children Hospital, Likas, Kota Kinabalu.
He received more detailed tests in Sabah Women and Children Hospital. A blood test was performed and the results came in positive that he was suffering from Rheumatic Heart Disease (RHD). A paediatric cardiologist from Sabah Women and Children Hospital, Likas did an X-ray on Charlie. He had found that one of Charlie’s four heart valves was infected.
After detection, Charlie was given antibiotics to fight off against his valve infection, and that treatment lasted for a year. Unfortunately, the valve was still infected, so Charlie had no other choice than to receive a monthly injection during the second year until proper treatment could be done; which is to undergo a heart surgery.
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| Charlie’s scar 3 months after the surgery. |
Rheumatic Heart Disease (RHD) suffered by Charlie is a condition of permanent damage to one or more heart valves. It is caused by rheumatic fever, which is a complication of an untreated bacterial infection with Streptococcus, or “strep”. Like in Charlie’s case, it is all started when he was down with fever but at the same time, he experienced breathing difficulties. Rheumatic fever, which symptoms are shown by Charlie during the early detection, is an inflammatory disease that follows a strep infection. If it is left untreated, it can affect many tissues, especially the heart, joints, skin, or brain. The infection may cause heart damage, particularly scarring of the heart valves. This forces the heart to work harder than usual to pump blood. In some cases, the damage may resolve on its own. However, there are also cases where the damage is permanent, which eventually causes heart failure. Heart-related complications of rheumatic fever may develop months or even years after the initial strep infection.
The doctor who handled Charlie’s case in Sabah Women and Children Hospital, Likas made an effort to ease out the family’s application to get funds from Sabah Council of Social Service (SCSS) as little Charlie needed to undergo a heart surgery as soon as possible. They waited for less than a year before the application was finally approved by YB Datuk Hajjah Jainab DSP Hj Ahmad Ayid, the Ministry of Community Development and Consumer Affairs. That was the first good news received by the family for Charlie’s case. In the meantime, Charlie still depended on the monthly injection until he turned 8.
At first, Charlie’s parents were informed about their available options on where the surgery can be performed, which was at a hospital in India, or Gleneagles Kota Kinabalu Hospital. Due to distance, going to India was not the family’s first option, so they opted for Gleneagles Kota Kinabalu Hospital as they were able to perform the heart surgery for Charlie there. That was indeed the second good news for the family.
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| Dr. Abu checking Charlie’s heart. |
Dr. Abu Bakar, Cardiothoracic Surgeon of Gleneagles Kota Kinabalu Hospital finally handled Charlie’s case. Before surgery, Charlie’s condition worsened up until the point where he turned terribly weak. His skin turned pale, he lost a lot of weight and he was down with swollen chest. He also experienced abdominal and chest pain which made his condition even worse. He was still facing difficulties in breathing due to the worsening of his heart condition. His parents were very heartbroken to see their youngest child being in that condition and have been praying hard to be able to see Charlie’s health back on track again. The strong parents refused to give up on their son.
So the heart surgery was done and there comes the third good news and the biggest blessings for the family. Charlie’s heart surgery was a success! Thanks to all doctors who did their parts throughout his journey as a Rheumatic Heart Disease patient, from a very weak and thin little boy, Charlie is now an active boy and he gained weight as his appetite increased. His parents’ prayers have been answered. Just like typical adventurous boys of his age, he is always with his outdoor activities, especially cycling and playing badminton. The surgery done by Dr. Abu Bakar from Gleneagles Kota Kinabalu Hospital is indeed life changing. Charlie’s case is a living proof of that.
The operation cost is approximately RM60,000 to RM80,000 and was fully funded by Sabah Council of Social Service (SCSS). SCSS, or also known as Majlis Perkhidmatan Masyarakat Sabah (MPMS) is established under the Chairmanship of the Commissioner Labour and Welfare with the main purpose of assisting voluntary welfare work and it includes for health-related cases like Charlie’s. SCSS is later became the constituent partner of The National Council of Social Welfare, Malaysia alongside with the Sarawak Social Welfare Council.
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| Charlie with his parents at Gleneagles Kota Kinabalu Hospital |
As parents, Magawa and Roining were over the moon and were very thankful to be able to receive full funding from SCSS to cover Charlie’s heart surgery cost at Gleneagles Kota Kinabalu Hospital. It was a blessing for the family who are desperate to see their beloved child to live a normal life again. And Charlie just did!
As a father, Magawa has a message for every family who are facing similar situation like theirs. To him, patience is the key. There must be a cure for all diseases, as long as we follow what the doctor’s advice. Doctors are specialised in their own fields and of course the suggestions made by them are the best. As for Charlie’s mother, Roining, she said that it is important for us to act fast for treatments and don’t be afraid to do the surgery because it does change our life. Like her husband, she also encourages each of us to listen to the doctor’s advice.
Gleneagles Kota Kinabalu Hospital, where Charlie’s life-changing heart surgery was performed, is a tertiary level hospital bringing Sabah a Healthcare facility of International standards that shall work towards enhancing care in the state of Sabah. It is assimilated with regionally well-established premium Gleneagles brand inculcating a facility with high quality amenities / comforts, service levels to match, infused with cutting edge technology and have a highly trained team of consultants and staffs.
Gleneagles Kota Kinabalu Cardiac Centre is bolstered by prevention program, diagnosis and treatment directly to the patients, both adults and children. The cardiac team consists of Interventional Cardiologist, Cardiothoracic Surgeon, Cardiac Anaesthetist, Perfusionist, Peadiatric Cardiologist & Cardiac Technicians. They have a standby cardiac catheterization laboratory that would operate for 24 hours. Thanks to the professionalism of the Gleneagles Kota Kinabalu Hospital, many lives were saved, that including Charlie’s.
